Do you live with chronic pain and / or chronic fatigue?
The new Chronic Pain & Fatigue (CPF) Network is launching to support you, both staff and postgraduate researchers, with an interest in and personal experience of, persistent pain or fatigue which adversely impacts daily living, whether on a short or longer-term basis. We aim to raise awareness, share practices in a safe environment and enable members to develop a personal toolkit for managing chronic pain and fatigue whilst working from home and campus.
Chronic pain and/or chronic fatigue are widely experienced by many people, yet poorly understood as health conditions. ‘Chronic’ in this context simply means ‘on-going’, without an easily-predicted end point. The uncertainty associated with managing incurable pain and/or fatigue often triggers mental health issues including anxiety and depression.
The Network is run on a dedicated MS Teams space and is guided by the following principles:
- Everyone who has an interest in and personal experience of chronic pain or chronic fatigue is welcome to attend and we value everyone’s experiences equally.
- We believe that each person has wisdom and expertise about their own experiences and what is likely to be real and/or helpful for them, and that this wisdom needs to be valued and respected.
- We encourage everyone who attends to contribute to decision making about both the content of the Teams space, any meetings, and the way that these are organised.
Confidentiality: Any disability or health condition you disclose to the Chronic Pain & Fatigue Network will not be shared by the administrators with anyone else outside of the Network. All participants in the Network undertake, by taking part, to respect one another’s right to confidentiality and will not share any personal information outside of this Network.
Support in the Workplace: In order to request reasonable adjustments in the workplace, you will need to formally disclose your disability so that a management referral then can be made to Occupational Health, who will advise your management team on any adjustments needed.
Social media: Here’s our Network feed on Twitter: #PainUniLeeds.